It's a chemo day....so mom gets to blog. The day started out per normal. Our chemo day regiment has been the same the previous 2 times and we saw no reason for this one to be any different. We usually grab some breakfast so Kaitlyn can take an anti-nausea pill that is part of a tri-pak. The pill has to be taken with some food on chemo day and then she takes one pill for the next two days after chemo. One hour before chemo begins we rub some of the numbing creme on Kaitlyn's port and then cover it with press and seal saran wrap. It's not a fashion statement most people want to make but the wrap keeps her clothing from becoming stained.
We arrive at Dr Newton's office and the nurses immediately begin prepping Kaitlyn for chemo. They insert the intravenous tubes into Kaitlyn's port and draw blood. Her blood has to be checked each and every time before chemo can begin. Can't start the process till we know what her white cell count looks like first. With the blood off to the the lab, we wait in one of the exam rooms for Dr. Newton to arrive. We meet first with one of Dr Newton's interms. He goes thru the list of questions (any adverse side effects, how's the nausea, fatigue, etc...). When Dr. Newton arrives she goes thru Kaitlyn's responses and then answers any questions we might have. Lastly, she checks the lump in Kaitlyn's breast. It's the last part that changes everything today.
It seems the lump has not changed in size at all. Which means the chemo isn't doing what it was intended to do. So, we have to change the chemo regiment. Enter Taxotere. It will now become the third chemo drug in Kaitlyn's drug equation. Instead of having one more round of AC, we will now have ACT every three weeks for 7more rounds. So today, after the the other two drugs are given, a bag of Taxotere is hung. It takes a full hour for it to drip thru. In addition, Kaitlyn is given more steroids to help with Kaitlyn's absorption of this chemo drug. In all chemo takes a little over three hours to complete and we spend a total of four and a half hours at the infusion center.
We will continue to monitor the lump thru another round of ACT. If there is still no change, then surgery could happen sooner. If you remember, the goal of chemo first before surgery, was to shrink that tumor. So if chemo isn't doing that then instead of adding additional drugs or changing the regiment again, surgery now... chemo later might be a more viable option. We will make that decision when it becomes necessary.
How is Kaitlyn handling all of this? Well to be frank (and hopefully not to offend any of you) she's pretty pissed off right now! Like she told us today..."I'm fighting pretty hard right now, so chemo needs to get it's act together and do what it's suppose to". Her dad and My's opinion is this in a nutshell...there is absolutely no reason to put her thru the whole process if chemo isn't doing what it was suppose to do. Surgery will happen no matter what, so it will just happen faster then anticipated.
Right now we just don't know what for certain the next step will be. We do know that Kaitlyn will have her next round of chemo on August 5th. And aside from that we know that this last round was somewhat grueling for her. She was pretty wiped out within an hour of completing it and was glad for the anti-nausea medicine prescribed for her.
So, she's resting right now and getting ready to be back at work tomorrow. She's hoping to celebrate her brother's birthday with him this weekend. Have I mentioned how much we appreciate Scott being there thru all of this? Today, he kept the Grandmas company while we were in the exam room, went over Kaitlyn's blood work with us (her results were better than last time), brought us up to speed on the new chemo drug (he had made a dose of this type in chem lab just this year), helped his sister with her IV pole when she had to use the restroom, did the Sudoko puzzle and the Cryptoquip in the Rochester Sentinel on his own in record time, got coffee for Grandma Thomas and himself, and entertained us with golf commentary on the British Open! Love, love, love that boy!! I know his sister will probably comment on that in her next blog.
Until then, thanks again for reading our posts, making comments on our blog, and most importantly, keeping Kaitlyn in your prayers!!
Love, Peace and Hope,
Lisa
6 comments:
Kaitlyn, I know today was another off day for you with all the news and new chemo. Just remember one thing through all of this: Prayers are being said all over the state and other states for you. God hears them even though we don't think so right now. Also, you are the champion in all of this. The laughter I know sometimes comes hard but YOU will win this battle. Soooo- keep fighting, keep rebounding and keep that positive attitude going. There is NOTHING and I mean NOTHING you can't do to beat and win this game.
Love
Grams and Gramps
Kaitlyn, sometimes the road to recovery is a narrow windy road with lots of ups and downs!! You have the strength to fight this I don't mean physical strength!!! I mean the strength from inside the fight to win no matter what you have to do!! Not giving up!! sometimes having a little cry and go right back to fighting!! I know you WILL BEAT THIS DIEASE AND BE A SURVIVOR AND WHEN YOU DO I WILL BE THERE TO WALK AROUND THE TRACK WITH YOU!! LOVE AND PRAYERS EVERY DAY!!!
Today starts a new week for you. It is a week without chemo and I am hoping without any major setbacks. Time to get the fighting game on and renew your strength. Have a wonderful week. Love ya
Grams.
Good afternoon Kaitlyn, I hope today finds you peaceful and content! All we can do is wait to see if your last round shunk that bad boy any! ADHD has prevented me from conquering the waiting game in the past but shot only time will tell! It was great to see you at the ball park! I hope to see you again soon! Until then take great care of yourself!!!!
Sweet Dreams and many prayers!!!!
Kaitlyn,
I'm sure that your frustration level must be off the charts. I can't help but feel that it might just be better to get that thing out of you and then decide what kind of follow up treatment you need instead of putting you through all of this other stuff. But I have complete trust in your medical personnel and that God is directing us to where and what we need to be doing. As always you and your family in my thoughts and prayers. Oh, by the way how AWESOME has Scott been, you gotta love that boy.
Love and Prayers,
Aunt Donna
Kaitlyn
I left a message on the other screen, I'm not that good at all this "blog" stuff. If you haven't tried visualizing already as your chemo cocktail is infusing, close your eyes and picture the pac man like chemo drug eating away at the cancer cells.
Your mom is doing a great job of journaling.
God bless you all,
love
Eileen
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